Stories

Piper's Story

“My name is Gia and my husband is Tim. We are both law enforcement officers located in New York. I am currently 35 weeks pregnant with a little girl named Piper Jae. Around 28 weeks on a routine ultrasound the doctor discovered that Piper Jae “PJ” had a two rare heart defects called Ebsteins Anomaly…

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Hudson's Story

I had our Hudson on July 17th. He had open heart surgery 10 days later and then liver surgery in September. Hudson has several challenges which have not allowed him to leave the CICU yet. He needs another open heart surgery in the coming months. He needs to grow before scheduling that. We are from…

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Oscar's Story

Our newly adopted son was born at University of Pennsylvania Hospital on 12/28. We arrived here on 1/6/16 and signed the adoption papers. I just read on your site that you traveled to CHOP. While CHOP is fantastic, we live in Cincinnati and I work at Cincinnati Children’s Hospital. We have 3 little girls at…

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Kristen's Story

My wife and I are from the suburbs of Philadelphia. My daughter Kristin had open heart surgery last Thursday. She received a bi-ventricular repair done at Boston Children’s Hospital. She is 5 years old and was adopted from China in July 2015. Our daughter is a complex little girl and the surgery went quite well.…

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Cyrus' Story

My son Cyrus is two years old.  Cyrus was born with severe cardiac defects that resulted in his mitral valve replacement at 9 months old in Omaha Nebraska.  Cyrus has an experimental valve in place.  There are less than thirty children in the nation that have this.  Omaha had never placed one before and they…

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Faith's Story

Thank you for having this incredible foundation for families in need. Our daughter Faith was born with Hypoplastic left heart syndrome and will be having her third heart surgery this September. This is the last in the 3 part series of surgeries for the condition. We are applying to stay with the Ronald McDonald house…

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Ally's Story

Ally heading home to Ohio after 2 weeks in Michigan for a successful heart surgery. You can follow her on Facebook at “Ally’s Heart Warriors”. Thanks to all of you, we were able to help Ally’s parents out with a hotel during their stay. We only can support these families with your support, so thank…

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Marcus' Story

Marcus smiling a couple days after his open heart surgery at C. S. Motts Hospital in Ann Arbor, Michigan. Doctors stated that the procedure to fix a Secundum ASD went as planned. Way to go Marcus!!!!

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Lainey's Story

Lainey will be going in for her second heart surgery later this month and we are able to help the family out based on your support, thank you. Also, thank you to the Treasure Coast Down Syndrome Awareness Group for connecting us. Lainey is going to rock this surgery!!!

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TD's Story

TD has been diagnosed with Congenitally Corrected Transposition of the Great Arteries with a large VSD, a Pulmonary Stenosis, a sub Pulmonary Stenosis and an abnormal tricuspid valve. In short, his ventricles are backwards. His arteries taking blood to the lungs and the rest of the body are swapped. He has a large hole in…

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